Can you still be funky but chic with a walker?
Love for David Johansen ❤️
Oh MAN it’s been a long week. I find myself convinced that it is Saturday but no, it is still only Friday. It has been a L O N N N N G G G G week. Ernie’s trip to St. Louis was good (all hail Bob as the best friend ever). The scans looked ok in general. A little weirdness in his lungs but not cancer related, his kidneys suck, but eh. No apparent growth of either cancer though. So we just need to get him some more energy. I’m nagging him to drink more water and snack, snack, snack. The person he saw said she’d contact his doctors here about a possible blood transfusion or something to pep him up.
It was a relief. He was utterly exhausted when he got home and I was tired from just being anxious. And my damn neck was hurting. I finally broke down and took a pain pill and oh, man did that help. I always forget how tired and unfocused pain can make you. So we both slept hard. He’s still pretty exhausted but we’re hanging in there.
It’s been almost six months since my surgery and so that has been rolling over and over in my mind of late. Am I glad I did it? Well, yes, honestly, I could barely walk, it felt like a glowing port in a storm so I can’t be sorry. I immediately could walk more easily and my pain and numbness were reduced. I must admit I had hoped I’d have more mobility at this point so that is a bit disappointing, and I do struggle with pain. I’ve done all the physical therapy and it helps to a point. I want to try to do some short walks once the weather warms a bit. It will be an ongoing issue for me and I need to come to terms with acceptance of the ways this affects my life and the way we live it. Of course, that’s in conjunction with Ernie’s health and where he is. So…my mind is a busy little place. Life is complicated for everyone, right?
Owen brought me home from work the other day and he was amazed at how well I went up the back steps. It’s a good reminder that there has been improvement and some of my work has paid off.
In other important notes, Owen watched part of the Martin Scorsese doc of David Johansen at the Carlyle in New York back just pre pandemic. Johansen has been on my mind now that his health issues have been made public. I’d been following his wife for the last year or so on Instagram and found their sweet loving endearing. Ok, back to Owen. Owen knew who David Johansen was but wasn’t familiar with his music at all. We started the doc and after a bit I looked over and he was entranced with a big smile on his face. I just could have cried with happiness. He just got it. He got it. Funky, funky, but chic.
I love all my boys so much.
Onward.
Love,
Cynthia
It’s a hard time to be having a hard time. Hugs.